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5 posts · Last used Mar 13

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@paul@oldfriends.live · Mar 13, 2026
Jesse Jackson’s misdiagnosis of Parkinson’s is common – new genetic discovery could lead to treatment for this deadly disease - Like Rev. Jackson, they misdiagnosed me and it took them a long time to DX my Multiple System Atrophy. RIP Rev. Jackson. The "Parkinson's" part of these illnesses are just foreplay for the disease that is to come. are characterized by the primary features of Parkinson disease, including bradykinesia, ataxia, resting tremor, and rigidity but also include additional features, depending on which subset. I will be glad when they break Parkinson-plus syndromes away from Parkinson's completely. Many doctors don't even know what they are and they are becoming more common. COVID research is leading to new discoveries and treatment of PPS. One area seeing strides is POTS. There was no money for POTS in medical research until COVID made it a standard ailment of Long COVID. Parkinson-plus syndromes include multiple system atrophy (MSA) (formerly known as Shy–Drager syndrome), progressive supranuclear palsy (PSP), and corticobasal degeneration (CBD), Dementia with Lewy bodies (DLB), Pick's disease and olivopontocerebellar atrophy. #Parkinsons #MSA #Neurology #MedMastodon https://theconversation.com/jesse-jacksons-misdiagnosis-of-parkinsons-is-common-new-genetic-discovery-could-lead-to-treatment-for-this-deadly-disease-276944 https://en.wikipedia.org/wiki/Parkinson-plus_syndrome https://www.ncbi.nlm.nih.gov/books/NBK585113/
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@wild1145@mastodonapp.uk · Mar 01, 2026
For the #MedMastodon community - I'm sending out an e-mail now, unfortunately despite repeated attempts since the 5th Jan of this year we've been unable to get control of the domain from the original founder of the site. With that in mind and to ensure the site does not just fall off the internet without warning in the future, we're announcing the closure of med-mastodon.com and are asking all active and registered users to migrate to a new server as soon as it is practical to do so. We have a new GoToSocial server setup to allow for imports of historic posts as well as our existing Mastodon servers that folks are more than welcome to join (Details on the e-mail). We will keep the med-mastodon site running throughout March as a minimum and hopefully everyone will have migrated by this time but we will keep a close eye and if needed can renew the site for an additional month to facilitate migrations. Sorry for the rubbish news, there is not a whole lot more we can do :(
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@wild1145@mastodonapp.uk · Feb 12, 2026

Just a note, we have added the following domains to our #Fediblock list across #MastodonAppUK #Universeodon and #MedMastodon

  • privacysafe.social
  • privacymatters.pro

Both domains have had more than a few recent reports which no action have been taken by the instances with relation to misinformation / anti-vax content and in the case of the second domain transphobia.

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@paul@oldfriends.live · Feb 05, 2026
RANT: Started using the new ENFit feeding tube bags and accessories. ENFit was an industry-wide change to "fix" a problem that didn't exist. I put it off as long as I could. Feeding tubes have been around since the 1800s, pretty much unchanged. There wasn't a problem "mixing up" feeding tubes with intravenous IVs. I shouldn't have to have to use a wrench to use my feeding tube or its accessories, like medication syringes. I shouldn't have to use an ENfit cleaning kit because stomach contents (puke) now reside in the connections after using them because you can't flush the cavity. #Medical #MedMastodon #enshittification #Enteral #Nursing #FeedingTube I shouldn't have to spend a hundred dollars to buy various adapters to use my stocked up medical supplies or spend thousands to buy new ENFit supplies. Of course, nothing is being produced "generically" now. It's all proprietary and shared by the few large mega-medical supply manufacturers through a trade organization they formed just for enteral (feeding tubes) care called the Global Engineered Device Supplier Association After 14 years with my feeding tube, ENfit has now taken away my #accessibility to use my feeding tube and self-administer some of my medical care. The ENFit transition is a global patient safety initiative to standardize enteral feeding tube connectors, replacing old "legacy" connectors with a new, twisting design to prevent misconnections with IV lines. https://stayconnected.org/enfit/
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Boosted by Citizen ❎️❎️ @AnnonBudgie@theblower.au
@jeneralist@mstdn.science · Jan 03, 2026
Hi! Jennifer Hamilton here, formerly of med-mastodon.com. That server shut down suddenly. If you followed me before for my toots about #vaccines, #PublicHealth, #FamilyMedicine, my gripes about #ElectronicMedicalRecords #EMR, or even just a few #caturday pictures and chats about bicycling, I'm on mstdn.science now. The old #MedMastodon went down suddenly in the last week of December 2025, and I don't have a list of my old followers. Please boost this so they can find me!
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