#chronicpain

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@ellespeaks@mastodon.social · 2d ago
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@ellespeaks@mastodon.social · 3d ago
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@ellespeaks@mastodon.social · 4d ago
45$ needed by 4/26 for my phone bill! No movement in 4 days. I am a disabled lesbian woman who cannot work due to chronic illnesses and pain, any help is super appreciated. V: d_fay Ppal: peach77 #mutualaid #MutualAidRequest #mutualaidboost #MutualAidSavesLives #disabled #chronicpain #chronicillness #poverty #lesbian #queer #lgbtq #disabledmutualaid #kofi #helpfolkslive @mutualaid@ovo.st @mutualaid@fedigroups.social @lgbtq@newsmast.community @povertyandinequality@newsmast.community @disabledvoices@newsmast.community
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@BowieSpace@mastodon.social · Apr 18, 2026
After 2 years working to be able to walk properly again and getting myself off double forearm crutches, and then 4 years being essentially bedridden except for absolute minimal basics of daily life(and some days not even that), yesterday I moved the tv back into the lounge room. Finally feeling like I'm at the stage where I can sit and watch tv without expending too much energy, and still have ability to do other things. It's a big deal. Please clap. #fibromyalgia #chronicpain #chronicfatigue
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@FibroJedi@gamepad.club · Apr 14, 2026
Another day or so of disconnect, due to energy lows and #Fibromyalgia pain high. I managed to do a walk, and start reading the second Dragon book with NJ. Oh, and I'm still alive. I hate how much #chronicpain has affected either what I can do, or taken the desire to do things away, or sapped my energy so I'm just not up to doing them. It's beginning to feel to restricting now. I have to exercise for health and weight control, so can't channel that energy elsewhere either...
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@FibroJedi__dup_32774@gamepad.club · Mar 02, 2026
"What do you do?", "had a busy day?" And similar questions are those I dread. I rarely have to meet acquaintances now, thankfully. But even the grocery drivers can ask that. It's friendly, it's conversational, it's shallow (in an appropriate way, not derogatory). Even "how are you?" Is a greeting, not a question people want an honest answer to. This writer thinks "what do you live for?" would be better. #chronicpain #ChronicIllnesses #chronicillness https://whatapain.co.uk/what-do-you-do
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@FibroJedi__dup_32774@gamepad.club · Feb 25, 2026
Via wifey, or neighbour gave me a new insight into how people perceive my #chronicpain. They basically thought I was getting better because they saw me doing my daily walk. That's cute, but I walk in pain, like everything else. I have to do stuff despite pain. I distract myself from it sometimes, and walking does that. But more exercise usually means more pain and an energy crash afterwards. There are other benefits like fresh air, views and... Pokestops. #fibro #pokemongo
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@FibroJedi__dup_32774@gamepad.club · Feb 25, 2026
I got my dates mixed up. My medication review is next Wednesday, not tomorrow. Just have to survive another week of pointless high pain and no answers, and hope the doctors can advise medication changes. The pain is still pointless, but hopefully the plan can change. I've lost 1 stone of weight and doubled my physical activity since my last review, so they can't blame it on those two things. #fibromyalgia #fibro #chronicpain
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@FibroJedi__dup_32774@gamepad.club · Feb 23, 2026
Hey all, I'm in a really rough "place" with my #Fibromyalgia right now. Effectively my meds aren't...effective. They take a bit of the edge off the pain, but it's not enough. I've felt incapable for most of the weekend. I have a phone call with the doc on Wednesday to discuss my meds. I can't go on in this level of pain forever. #ChronicPain #FedUp
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@FibroJedi__dup_32774@gamepad.club · Feb 21, 2026

A quick “hi”. My #chronicpain and fatigue are truly awful. So, these pictures reflect yesterday and today.

  1. Feebas (#PokemonGo), I finally evolved it.

  2. Tree-like circular sketch for a woodburning idea.

  3. #GenshinImpact on my phone as I’ve been on a sofa a lot. PC barely touched due to head sensitivity. At least I can play an open world game, even if it’s not the one(s) I’d rather be playing. This world is very pretty, and I like unintentionally finding puzzles to solve.

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