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#shareyourstory

3 posts · Last used Mar 06

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@poconnor@pkutalk.com · Mar 06, 2026

March PKU & Brain Health Update:

  • Rare Disease Day equity report,
  • PKU research, pancake recipes,
  • brain injury app trials,
  • and a book sale ending 7th March! Share your story & support the community.

https://www.pigpen.page/march-2026/

#pku #rarediseaseawareness #shareyourstory #phenylketonuria #braininjury

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@booktrust@mastodonapp.uk · Mar 03, 2026
🗓️ We have an exciting webinar coming up to celebrate the National Year of Reading! Waterstones #ChildrensLaureate Frank Cottrell-Boyce will join us to share the inspiration he has drawn from meeting early years practitioners and we'll be launching our new #ShareYourStory campaign, too 👇 https://bit.ly/4b4ikS9
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@poconnor@pkutalk.com · Feb 27, 2026
Your Story Matters! For Rare disease day, people with PKU are sharing their story. 👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced. 🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health. 📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym. https://www.pigpen.page/share-your-story-2/ #ShareYourStory #PKU #RareDiseaseDay #RareAware
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